To fund clinical trials and advanced medical technologies that seek to find a cure and offer improved treatment opportunities and early detection for neurodegenerative diseases and Pancreatic Cancer.
Multiple sclerosis (MS) is an unpredictable, degenerative, neurological disease that disrupts the flow of information within the brain and between the brain and body. It is the leading neurological cause of disability in young adults. Approximately 40% of people with MS have a progressive form of the disease, experiencing debilitating symptoms including fatigue, pain, cognitive challenges, difficulty walking and decreasing ability to work and function independently. People with progressive MS face uncertainty, losing ground each day which can cause a sense of helplessness.
While significant progress has been made in treating relapsing-remitting MS with 16 FDA approved disease-modifying treatments, there is only one approved treatment for a small sub-set of people living with primary progressive MS. This urgent, worldwide need for breakthrough treatments resulted in the formation of the International Progressive MS Alliance. The Alliance has brought together the global MS community including MS organizations, leading research institutions, the pharmaceutical industry and people affected by progressive MS to develop life-changing treatments.
For more information, please visit the MS Alliance’s website. www.progressivemsalliance.org
YouTube Video: Living with Progressive MS https://youtu.be/1BlufiE46Ps
One of Tom’s close family friends lives with MS and Tom has supported the National MS Society (USA) for over a decade. In 2018, the Foundation for a Better World made the largest single investment by a private foundation for Progressive MS research to fund a research and drug development program for the International Progressive MS Alliance. Dr. Gianvito Martino at the San Raffaele Hospital and Scientific Institute in Milan, Italy is leading a global collaborative project to identify molecules that may provide protection to nerve cells or promote repair resulting from damage caused by progressive MS.
Tom and Beatriz were recognized and inducted into the Circle of Distinction at the 2018 National MS Society Leadership Conference recognizing the profound impact the Foundation for a Better World has had in accelerating the work of the International Progressive MS Alliance and helping people dealing with this aggressive form of MS.
There are nearly 5.7 million people living with Alzheimer’s disease and with the growing aging population and the increased prevalence of AD, that number is predicted to skyrocket. To date, there is no cure for Alzheimer’s disease. While there have been a handful of FDA-approved drugs for the treatment of Alzheimer’s, these drugs, at best, marginally slow down the progression of the disease and come with a host of intense side effects. Diagnosing this disease has also presented a major challenge to the scientific community as brain imaging showing the hallmark AD plaques is not only expensive, it is only conclusive once the disease has fully taken hold.
Over the past few decades, our understanding of the inner-workings of this disease has grown immensely and great progress has been made in mapping its course. Our growing knowledge of the human genome and advances in gene therapy are very exciting fields in the fight against Alzheimer’s. There is also great momentum in the development of better and cheaper biomarkers to aid in the early diagnosis of this disease. Though it is hard to be optimistic about a disease that has evaded treatment for so long, there are new discoveries and improved technologies being developed daily as the search for a cure continues.
Our goal at the FFABW is to fund clinical trials and advanced medical technologies that seek to find a cure and offer improved treatment opportunities and early detection for the millions of people suffering from Alzheimer’s disease. We have partnered with the Alzheimer’s Drug Discovery Foundation to achieve this goal. They are laser-focused on finding new and better drugs for Alzheimer’s and we remain hopeful that a cure will be found as we join them in this endeavor. To learn more about the ADDF, please visit the link above.